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The NORD Manual: A Comprehensive Resource for Uncommon and Rare Disorders
National Organization for Rare Disorders, Inc
Medifor Inc
Pathology

The NORD Manual is an invaluable resource for both physicians and patients covering over 1,100 uncommon and rare disorders. Although a particular rare disorder may affect a small population, approximately 20 million Americans are affected by rare diseases as a whole. Created in 1983 by the National Organization for Rare Disorders, Inc. (NORD), this extensive collection of reports has been continually updated and medically reviewed to provide physicians, patients, and family members with the most complete, current information on rare and uncommon diseases. The NORD Manual contains vital hard-to-find information on:
  • Birth Defects and Chromosomal Disorders
  • Genetic Diseases
  • Inborn Errors of Metabolism
  • Neurological Diseases
  • Hematologic and Oncologic Disorders
  • Immunologic Disorders
...and many more...

"When you hear hooves, it's usually a horse. However, sometimes it's a Zebra!"

Primary care physicians may not treat a patient for an uncommon or rare disorder every day, but a typical primary care practice will include patients with at least one of the covered diseases. When resources are needed, there is no other resource like The NORD Manual .

  • Provides disease reports containing several sections including a general description (abstract) of the disorder, synonyms, symptomatology, etiology, epidemiology, related disorders, recognized standard therapies, investigational therapies, resources to contact for further information, and references (citations from the medical literature) for further study.
  • Provides instant links to hundreds of web sites for additional information.
  • Includes an additional database of approximately 1,500 patient support groups, addresses, phone numbers, and when available, web sites and e-mail addresses.
  • Includes an "orphan drug" database with information on drugs that have received this special status from the FDA, their sponsors, and contact information.
  • Offers thousands of hyperlink speed connections between disease reports organizations, and "orphan drug" designations.
  • Is fully keyword searchable by primary disease name, synonyms, symptoms or conditions.
  • Enables physicians to print out information, written at a twelfth grade level, for patients.
CD-ROM The NORD Manual: A Comprehensive Resource for Uncommon and Rare Disorders, CD-ROM
Status Out of Print
Format Software
ISBN 1886877882
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National Organization for Rare Disorders Inc NORD Manual Comprehensive Resource Uncommon Rare Disorders

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